A One Stop Shop for Duchenne Muscular Dystrophy is here!

Posted on by
Reply

This slideshow requires JavaScript.

This slideshow requires JavaScript.

As a mother of a Duchenne Muscular Dystrophy Child, I have spent the past 4 years researching, collaborating and advocating for Duchenne.  I realized immediately, upon my son’s diagnosis, that there was a need for a site, such as this. My mission to to include sources that families dealing with Duchenne commonly use, so, that no matter where you are, you can always access information that you may need.  I hope that it will serve as a source for advocacy as well.  I also hope that as new children are diagnosed, that some day, doctors can say, go to Duchenneinfo.com for many sources of information.

The information is for informational purposes only and isn’t endorsed by the authors of this website and shouldn’t be used to diagnose or treat your child. 

This website is a work in progress and I hope that folks will continue to provide information to me to improve it (I need more picture too).  I do plan to change the organization of the site, but, thought I’d get it out there, so that we can all work together to add information that folks see fit.  We are all in this together, to help our sons (and daughters) in every way possible and to work together to cure Duchenne.